Welcome, to our website. We’ve put it together to celebrate our family: to keep in touch with those of you who are far away; and to share our experiences both happy and sad.
The site started in early 2005 soon after Mary became pregnant with Harry (or Basil as we called him back then), and was about keeping our family up to date with what was happening with the pregnancy. It also became a vehicle for remembering Ellen and sharing our experience of neonatal hemochromatosis.
It’s difficult to tell Ellen’s story in the form of a blog, so we’ve put together a special page “Our Story” to share our experience from our differing points of view.
There is lots of photos and videos of our son Harry who we adore, a bit of family and friends stuff and other bits and pieces.
Please feel free to leave comments, or email us at trentandmary@gmail.com. We hope you enjoy our site.
October 31, 2006 at 12:24 pm
i have a question that maybe someone can answer for me i am pregnant and my babys grandfather on the dads side has this disease. I want to know if someone can tell me what my babys chances are for having it also .
November 1, 2006 at 6:42 am
No, your baby cannot get neonatal hemochromatosis from anyone in your or your partner’s family. It is not genetic. Neonatal Hemochromatosis is completely different from the adult “Hemochromatosis” which is genetic. Click on the link “Sandra Thomas” under recent comments to read more about Neonatal Hemochromatosis.
April 23, 2007 at 11:37 am
Thank You
August 12, 2007 at 1:27 am
Several of my family members have Hereditary Hemochromatosis. I had no idea that a baby could have a condition like this too. God bless and thanks for the great blog.
January 10, 2009 at 12:10 pm
hi i have haemochromatosis and am 14weeks pregnant. can this harm my baby in any way.do you have any advise. thank you.
January 12, 2009 at 2:46 pm
Elaine,
The good news is that there’s no connection between hereditary hemochromatosis and neonatal hemochromatosis (NH) except in name and effect. So babies of people who have hereditary hemochromatosis do not have a greater chance of suffering from NH. Hope this helps
Trent